Percepção sobre a doença renal crônica de pacientes em hemodiálise: Revisão Sistemática.
DOI:
https://doi.org/10.22199/S07187475.2013.0001.00006Palabras clave:
Percepção sobre a doença, representação sobre a doença, doença renal crônica, hemodiálise, qualidade de vida, Illness perception, illness representation, chronic kidney disease, hemodialysis, quality of life,Resumen
O objetivo do artigo foi realizar uma revisão sistemática sobre percepção da doença renal crônica de pacientes em hemodiálise, entre janeiro de 2001 e dezembro de 2012 nas bases de dados Academic Search Premier e Medline with Full Text. Foram encontrados 13 artigos publicados em diferentes revistas da área da saúde. Os resultados indicaram que a percepção negativa da doença foi relacionada à não-adesão ao tratamento, a comportamentos de autocuidado, síntomas de depressão, qualidade de vida, mortalidade, sobrevida e na adesão ao tratamento à medicina complementar e alternativa. Conclusão: o conceito de percepção da doença é útil para compreensão do impacto da doença renal crônica e do tratamento em hemodiálise para a qualidade de vida desses pacientes.
The purpose of this article is a systematic review of the international literature on hemodialysis patients’ perception of chronic kidney disease. It was carried out between January 2001 and December 2012 using the databases Academic Search Premier and Medline with Full Text. The authors found 13 articles published in health-related magazines. Results show that negative illness perception was related to non-adherence to the recommended treatment, self-care behaviors, depression symptoms, quality of life, mortality, survival, and adherence to complementary and alternative medical treatments. The authors conclude that perception of the illness is useful in understanding the impact of chronic kidney disease and hemodialysis treatment on these patients' quality of life.
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Referencias
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Cameron, L. D., & Moss-Morris, R. (2004). Illness-related cognition and behaviour. In A. D. Kaptein & J. Weinman (Eds.), Health Psychology (pp. 84-110). Oxford, UK: Blackwell Publishers.
Carlson, D. M., Johnson, W. J., & Kjellstrand, C. M. (1987). Functional status of patients with end-stage renal disease. Mayo Clinic Proceedings, 62, 338-344.
Castro, E. K., & Remor, E. A. (2004). Aspectos Psicossociais e HIV/AIDS, um estudo bibliométrico (1992-2002) comparativo dos artigos publicados entre Brasil e Espanha. Psicologia: Reflexão e crítica, 17, 243-250.
Chilcot, J. (2012). The importance of illness perception in end-stage renal disease: Associations with psychosocial and clinical outcomes. Seminars in Dialysis, 25(1), 59-64.
Chilcot, J., Wellsted, D., & Farrington, K. (2011). Illness perceptions predict survival in haemodialysis patients. American Journal of Nephrology, 33, 358–363.
Chilcot, J., Wellsted, D., & Farrington, K. (2010). Illness representations are associated with fluid nonadherence among hemodialysis patients. Journal of Psychosomatic Research, 68, 203- 212.
Chilcot, J., Wellsted, D., Davenport, A., & Farrington, K. (2011). Illness representations and concurrent depression symptomsin haemodialysis patients. Journal of Health Psychology 16(7), 1127-1137.
Covic, A., Seica, A., Gusbeth-Tatomir, P., Gavrilovici, O., & Goldsmith, D. J. A. (2004). Illness representations and quality of life scores in haemodialysis patients. Nephrology Dialysis Transplantation, 19, 2078– 2083.
Daugirdas, J. T., Blake, P. G., & Ing, T. S. (2003). Manual de diálise (3.ed). Rio de Janeiro: Editora Médica e Científica.
Dijk, S. V., Scharloo, M., Kaptein, A. A., Thong, M. S. Y., Boeschoten, E. W., Grootendorst, D. C., Krediet, R. T., & Dekker, F. W. (2009). Patients’ representations of their end-stage renal disease: Relation with mortality. Nephrology Dialysis Transplantation, 24, 3183–3185.
Edgar, K. A., & Skiner, T. C. (2003). Illness representations and coping as predictors of emocional well being in adolescents with type 1 diabetes. Journal of Pediatric Psychology, 28(7), 485-493.
Fleck, M., Leal, O. F., Louzada, S., Xavier, M., Chachamovich, E., Vieira, G., Santos, L., & Pinzon, V. (2000). Aplicação da versão em português do instrumento abreviado de avaliação da qualidade de vida “WHOQOL-brief”. Revista de Saúde Pública, 34, 178-183.
Fowler, C., & Baas, L. S. (2006). Illness representations in patients with chronic kidney disease on maintenance hemodialysis. Nephrology Nursing Journal, 33(2), 173-174, 179-186.
Gilbar, O., Or-Han, K., & Plivazky, N. (2005). Mental adjustment, coping strategies, and psychological distress among enstage renal disease patients. Journal of Psychosomatic Research, 58, 471-476.
Griva, K., Jayasena, D., Davenport, A., Harrison, M., & Newman, S. P. (2009). Illness and treatment cognitions and health related quality of life in end stage renal disease. British Journal of Health Psychology, 14, 17–34.
Griva, K., Jayasena, D., Davenport, A., Harrison, M., & Newman, S. P. (2010). An evaluation of illness, treatment perceptions, and depression in hospital- vs. home-based dialysis modalities. Journal of Psychosomatic Research, 69, 363-370.
Hagger, M., & Orbell, S. (2003). A metaanalytic review of the Common-sense Model of Illness Representations. Psychology and Health, 18, 141-184.
Jansen, D. L., Rijken, M., Heijmans, M., & Boeschoten, E. W. (2010). Perceived autonomy and self-esteem in Dutch dialysis patients: The importance of illness and treatment perceptions. Psychology and Health, 25(6), 733– 749.
Kaptein, A. A., Yamaoka, K., Snoei, L., Kobayashi, K., Uchida, Y., Kloot, W. A., Tabei, T., Kleijn, W., Koster, M., & Wijnands, G. (2011). Illness perceptions and quality of life in Japanese and Dutch patients with nonsmall-cell lung cancer. Lung Cancer, 72, 384-390.
Kaveh, K., & Kimmel, P. L. (2001). Compliance in hemodialysis patients: Multidimensional measures in search of a gold standard. American Journal of Kidney Diseases, 37(2), 244-266.
Kim, Y., & Evangelista, L. S. (2010). Relationship between illness perceptions, treatment adherence, and clinical outcomes in patients on maintenance hemodialysis. Nephrology Nursing Journal, 37(3), 271-281.
Kim, Y., Evangelista, L. S., Phillips, L. R., Pavlish, C., & Kopple, J. D. (2012). Racial/ethnic differences in illness perceptions in minority patients undergoing maintenance hemodialysis. Nephrology Nursing Journal, 39(1), 39-49.
Kimmel, P. L. (2002). Depression in patients with chronic renal disease: What we know and what we need to know. Journal of Psychosomatic Research, 53, 951-956.
Kusumota, L., Rodrigues, R. A. P., & Marques S. (2004). Idosos com insuficiência renal crônica: Alterações no estado de saúde. Revista LatinoAmericana de Enfermagem, 12(3), 525- 532.
Leventhal, H., Nerenz, D., & Steele, D. (1984). Illness representations and coping with health treats. In A. Baum & J. Singer (Eds.), Handbook of Psychology and Health (pp. 221-252). New York: Erlbaum.
Lindqvist, R., Carlsson, M., & Sjödén, P. (1998). Coping strategies and quality of life among patients on hemodialysis and continuous ambulatory peritoneal dialysis. Scandinavian Journal of Caring Sciences, 12, 223-230.
Madeira, E. Q. P., Lopes, G. S., & Santos, S. F. F. (1998). A investigação epidemiológica na prevenção da insuficiência renal terminal. Ênfase no estudo da agregação familiar. Medolnline, 1(2). Recuperado em 23 de junho, 2010, de http://www.medonline.com.br/med_ed/med2/epidemio.htm.
Maes, S., & Karoly, P. (2005). Selfregulation assessment and intervention in physical health and illness: A review. Applied Psychology: An International Review, 54, 267-299.
Martins, M. R. I., & Cesarino, C. B. (2005). Qualidade de vida de pessoas com doença renal crônica em tratamento hemodialítico. Revista LatinoAmericana de Enfermagem, 13(5), 670-676.
Moss-Morris, R., Weinman, J., Petrie, K. J., Horne, R., Cameron, L. D., & Buick, D. (2002). The Revised Illness Perception Questionnaire (IPQ-R). Psychology and Health, 17, 1, 1-16.
National Kidney Foundation. (2002). National Kidney Foundation Kidney Disease Outcomes Quality Initiative (K/DOQI) Guidelines. Recuperado em 21 de fevereiro, 2006, de http://www.kidney.org/professionals/kdoqi/guidelines_ckd/toc.htm
Nicassio, P. M., Meyerowitz, B. E., & Kerns, R. D. (2004). The future of health psychology. Health Psychology, 23, 132-137.
O'Connor, S. M., Jardine, A. G., & Millar, K. (2008). The prediction of self-care behaviors in end-stage renal disease patients using Leventhal's SelfRegulatory Model. Journal of Psychosomatic Research, 65, 191–200.
Petrie, K. J, Cameron, L., Ellis, C. J, Buick, D., & Weinman, J. (2002). Changing illness perceptions after myocardial infarction: An early intervention randomized controlled trial. Psychosomatic Medicine, 64, 580-586.
Romão Jr., J. E. (2004). Doença renal crônica: Definição, epidemiologia e classificação. Jornal Brasileiro de Nefrologia, 26(3), 1-3.
Timmers, L., Thong, M., Dekker, F. W., Boeschoten, E. W., Heijmans, M., Rijken, M., Weinman, J., & Kaptein, A. (2008). Illness perceptions in dialysis patients and their association with quality of life. Psychology and Health, 23(6), 679–690.
Zimpel, R. R., & Fleck, M. P. (2007). Quality of life in HIV-positive Brazilians: Application and validation of the WHOQOL-HIV, Brazilian version. AIDS Care, 19, 923-930.
Bishop, F. L., Yardley, L., & Lewith, G. T. (2008). Treatment appraisals and beliefs predict adherence to complementary therapies: A prospective study using a dynamic extended self-regulation model. British Journal of Health Psychology, 13, 701-718.
Broadbent, E., Petrie, K. J., Main, J., & Weinman, J. (2006). The Brief Illness Perception Questionnaire. Journal of Psychosomatic Research, 60, 631-637.
Cameron, L. D., & Leventhal, H. (2003). The self-regulation of health and illness behaviour. London: Routledge.
Cameron, L. D., & Moss-Morris, R. (2004). Illness-related cognition and behaviour. In A. D. Kaptein & J. Weinman (Eds.), Health Psychology (pp. 84-110). Oxford, UK: Blackwell Publishers.
Carlson, D. M., Johnson, W. J., & Kjellstrand, C. M. (1987). Functional status of patients with end-stage renal disease. Mayo Clinic Proceedings, 62, 338-344.
Castro, E. K., & Remor, E. A. (2004). Aspectos Psicossociais e HIV/AIDS, um estudo bibliométrico (1992-2002) comparativo dos artigos publicados entre Brasil e Espanha. Psicologia: Reflexão e crítica, 17, 243-250.
Chilcot, J. (2012). The importance of illness perception in end-stage renal disease: Associations with psychosocial and clinical outcomes. Seminars in Dialysis, 25(1), 59-64.
Chilcot, J., Wellsted, D., & Farrington, K. (2011). Illness perceptions predict survival in haemodialysis patients. American Journal of Nephrology, 33, 358–363.
Chilcot, J., Wellsted, D., & Farrington, K. (2010). Illness representations are associated with fluid nonadherence among hemodialysis patients. Journal of Psychosomatic Research, 68, 203- 212.
Chilcot, J., Wellsted, D., Davenport, A., & Farrington, K. (2011). Illness representations and concurrent depression symptomsin haemodialysis patients. Journal of Health Psychology 16(7), 1127-1137.
Covic, A., Seica, A., Gusbeth-Tatomir, P., Gavrilovici, O., & Goldsmith, D. J. A. (2004). Illness representations and quality of life scores in haemodialysis patients. Nephrology Dialysis Transplantation, 19, 2078– 2083.
Daugirdas, J. T., Blake, P. G., & Ing, T. S. (2003). Manual de diálise (3.ed). Rio de Janeiro: Editora Médica e Científica.
Dijk, S. V., Scharloo, M., Kaptein, A. A., Thong, M. S. Y., Boeschoten, E. W., Grootendorst, D. C., Krediet, R. T., & Dekker, F. W. (2009). Patients’ representations of their end-stage renal disease: Relation with mortality. Nephrology Dialysis Transplantation, 24, 3183–3185.
Edgar, K. A., & Skiner, T. C. (2003). Illness representations and coping as predictors of emocional well being in adolescents with type 1 diabetes. Journal of Pediatric Psychology, 28(7), 485-493.
Fleck, M., Leal, O. F., Louzada, S., Xavier, M., Chachamovich, E., Vieira, G., Santos, L., & Pinzon, V. (2000). Aplicação da versão em português do instrumento abreviado de avaliação da qualidade de vida “WHOQOL-brief”. Revista de Saúde Pública, 34, 178-183.
Fowler, C., & Baas, L. S. (2006). Illness representations in patients with chronic kidney disease on maintenance hemodialysis. Nephrology Nursing Journal, 33(2), 173-174, 179-186.
Gilbar, O., Or-Han, K., & Plivazky, N. (2005). Mental adjustment, coping strategies, and psychological distress among enstage renal disease patients. Journal of Psychosomatic Research, 58, 471-476.
Griva, K., Jayasena, D., Davenport, A., Harrison, M., & Newman, S. P. (2009). Illness and treatment cognitions and health related quality of life in end stage renal disease. British Journal of Health Psychology, 14, 17–34.
Griva, K., Jayasena, D., Davenport, A., Harrison, M., & Newman, S. P. (2010). An evaluation of illness, treatment perceptions, and depression in hospital- vs. home-based dialysis modalities. Journal of Psychosomatic Research, 69, 363-370.
Hagger, M., & Orbell, S. (2003). A metaanalytic review of the Common-sense Model of Illness Representations. Psychology and Health, 18, 141-184.
Jansen, D. L., Rijken, M., Heijmans, M., & Boeschoten, E. W. (2010). Perceived autonomy and self-esteem in Dutch dialysis patients: The importance of illness and treatment perceptions. Psychology and Health, 25(6), 733– 749.
Kaptein, A. A., Yamaoka, K., Snoei, L., Kobayashi, K., Uchida, Y., Kloot, W. A., Tabei, T., Kleijn, W., Koster, M., & Wijnands, G. (2011). Illness perceptions and quality of life in Japanese and Dutch patients with nonsmall-cell lung cancer. Lung Cancer, 72, 384-390.
Kaveh, K., & Kimmel, P. L. (2001). Compliance in hemodialysis patients: Multidimensional measures in search of a gold standard. American Journal of Kidney Diseases, 37(2), 244-266.
Kim, Y., & Evangelista, L. S. (2010). Relationship between illness perceptions, treatment adherence, and clinical outcomes in patients on maintenance hemodialysis. Nephrology Nursing Journal, 37(3), 271-281.
Kim, Y., Evangelista, L. S., Phillips, L. R., Pavlish, C., & Kopple, J. D. (2012). Racial/ethnic differences in illness perceptions in minority patients undergoing maintenance hemodialysis. Nephrology Nursing Journal, 39(1), 39-49.
Kimmel, P. L. (2002). Depression in patients with chronic renal disease: What we know and what we need to know. Journal of Psychosomatic Research, 53, 951-956.
Kusumota, L., Rodrigues, R. A. P., & Marques S. (2004). Idosos com insuficiência renal crônica: Alterações no estado de saúde. Revista LatinoAmericana de Enfermagem, 12(3), 525- 532.
Leventhal, H., Nerenz, D., & Steele, D. (1984). Illness representations and coping with health treats. In A. Baum & J. Singer (Eds.), Handbook of Psychology and Health (pp. 221-252). New York: Erlbaum.
Lindqvist, R., Carlsson, M., & Sjödén, P. (1998). Coping strategies and quality of life among patients on hemodialysis and continuous ambulatory peritoneal dialysis. Scandinavian Journal of Caring Sciences, 12, 223-230.
Madeira, E. Q. P., Lopes, G. S., & Santos, S. F. F. (1998). A investigação epidemiológica na prevenção da insuficiência renal terminal. Ênfase no estudo da agregação familiar. Medolnline, 1(2). Recuperado em 23 de junho, 2010, de http://www.medonline.com.br/med_ed/med2/epidemio.htm.
Maes, S., & Karoly, P. (2005). Selfregulation assessment and intervention in physical health and illness: A review. Applied Psychology: An International Review, 54, 267-299.
Martins, M. R. I., & Cesarino, C. B. (2005). Qualidade de vida de pessoas com doença renal crônica em tratamento hemodialítico. Revista LatinoAmericana de Enfermagem, 13(5), 670-676.
Moss-Morris, R., Weinman, J., Petrie, K. J., Horne, R., Cameron, L. D., & Buick, D. (2002). The Revised Illness Perception Questionnaire (IPQ-R). Psychology and Health, 17, 1, 1-16.
National Kidney Foundation. (2002). National Kidney Foundation Kidney Disease Outcomes Quality Initiative (K/DOQI) Guidelines. Recuperado em 21 de fevereiro, 2006, de http://www.kidney.org/professionals/kdoqi/guidelines_ckd/toc.htm
Nicassio, P. M., Meyerowitz, B. E., & Kerns, R. D. (2004). The future of health psychology. Health Psychology, 23, 132-137.
O'Connor, S. M., Jardine, A. G., & Millar, K. (2008). The prediction of self-care behaviors in end-stage renal disease patients using Leventhal's SelfRegulatory Model. Journal of Psychosomatic Research, 65, 191–200.
Petrie, K. J, Cameron, L., Ellis, C. J, Buick, D., & Weinman, J. (2002). Changing illness perceptions after myocardial infarction: An early intervention randomized controlled trial. Psychosomatic Medicine, 64, 580-586.
Romão Jr., J. E. (2004). Doença renal crônica: Definição, epidemiologia e classificação. Jornal Brasileiro de Nefrologia, 26(3), 1-3.
Timmers, L., Thong, M., Dekker, F. W., Boeschoten, E. W., Heijmans, M., Rijken, M., Weinman, J., & Kaptein, A. (2008). Illness perceptions in dialysis patients and their association with quality of life. Psychology and Health, 23(6), 679–690.
Zimpel, R. R., & Fleck, M. P. (2007). Quality of life in HIV-positive Brazilians: Application and validation of the WHOQOL-HIV, Brazilian version. AIDS Care, 19, 923-930.
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2016-11-25
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Percepção sobre a doença renal crônica de pacientes em hemodiálise: Revisão Sistemática. (2016). Salud & Sociedad, 4(1), 70-89. https://doi.org/10.22199/S07187475.2013.0001.00006
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