An approximation to the experience of living with a child diagnosed with Autism Spectrum Disorder through the family narrative of significant adults

Abstract

Purpose: The purpose of this research was to describe the experience of significant adults of a family that lives with a member diagnosed with a developmental disorder, part of the Autism Spectrum Disorder (ASD), from the narrative of the other members. Method: As data recollection technique, a focal group interview was implemented to the family group which are the study sample, under a unique case design. The results were obtained through thematic analysis, using three main codes: knowledge and information, affectivity, and relationship dynamics. Results: As relevant findings of the research we can point out that changes produced in the family group by the diagnosis, were not consequent with the theory, as knowledge the diagnosis does not lead to a crisis, but it rather produced relief linked to the possibility of understanding the reality. Likewise, the family recognizes as relevant the professional support and information that experts could provide. Conclusion: it is positive for the family with a member with ASD to maintain permanent advice with a specialized team, avoiding isolation and strengthening the capacity to receive, understand and develop support resources.